13 responses

  1. Erica
    September 13, 2007

    This is a very timely article for me. As a music therapist who works with children who have autism, I was all but signed up today to participate in the Autism Speaks walk. Before I clicked continue, though, I decided to do some research about the organizer. I was not pleased with what I found and backed out. Thank you for expressing your opinion. I appreciate the reassurance that my decision was the right one.

  2. Sheila
    March 27, 2008

    I LOVE how you emphasize your point using “Womanhood Speaks!” Do keep up the great work!

  3. Jenni
    June 20, 2008

    Love the article. I posted a link to it in my blog. Hopefully more will see it that way.

  4. Jude
    June 22, 2008

    Thank you, Cody, for putting this so eloquently. I have a hard time putting my frustrations into words. I’m bookmarking this for future reference. I also added FaceBlind to my communities on livejournal. I never knew other people had the same issues I do.

  5. Ed
    June 23, 2008

    This is really good with a lot of good points. I also think the Womanhood Speaks is a great example.

  6. Sarah
    January 24, 2009

    FANTASTIC argument about an organization that advocates for people with autism . . . without including a single autistic person in the decision making process! Thank you for reminding us of the unique gifts of autism (one researcher I’ve studied believes that ONLY people with autism can rise past a certain level in certain theoretical fields), and thank you for reminding us that many people with autism wouldn’t have it any other way.

  7. L Stone
    February 19, 2009

    Thank you for writing this article, and for the links to other advocates who speak from the inside of an autism diagnosis. I work with children with autism diagnoses, and there is a new organization starting up in our area that hopes to become an information clearinghouse and support organization for children/families affected by autism. I have been asked to participate, and one of my first actions is going to be to raise this very issue, and to ask that we seek adults in our community living with autism to serve on our board/committees. Tito Mukhopadhyay and many others are saying the same thing–that people with autism can speak for themselves, and that the real problems lie in societal ignorance, bias, lack of education and exposure to real, meaningful information on the subject of people with autism. I struggle every day in my work with how to provide respectful, intelligent and beneficial sessions for the children with whom I work. Presumption of intelligence is my starting point. How much we healthcare professionals need the voices of people like you who can guide us so that we can actually aid a child, rather than frustrate or patronize! Please keep on speaking out–there are many who are listening. I will do what I can in my limited sphere. Thank you again for writing.

  8. Hiro
    March 23, 2009

    Thank you for this entry.

    My university is signed up to do a walk/run for this organization, and I am enrolled in it as well, but this has given new light to the facts. (Though I’ll still be participating, since I’m already signed up.)

    It’s always great to look from both sides of the spectrum, especially as a special education major.

  9. betty samson
    July 26, 2010

    Thank you for your insight and courage to speak out about a group probably started by rich people who had never given a thought to autism until a child in the family was diagnosed. They are used to throwing money around and giving big dress up charity events. Helping others is not their forte.

    I constantly hear about autism and children, fine, but the adults are overlooked.
    Many adults with autism are in greater need than the children, who still have their parents to advocate for them. The children are cute, the adults usually are not.
    True many adults with autism can self advocate, but many cannot and no one is there for them.

    Thanks again for your fine blog.

  10. Selena
    September 12, 2010

    Autism Speaks only speaks for themselves and not the rest of us and the sooner they realise we can speak for ourselves the better it’ll be for all.

    My advice to Autism Speaks is to get out there and speak to some real people.

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